EUROPEAN FSP SUPPORT GROUPS

 

 

 

 

HSP'ers

 

COUNTRY

NAME

E-MAIL

WEBSITE ADRESS

Austria

Spastische Spinalparalyse Selsthilfegruppe

k.langeder@edw.or.at

http://www.spinalparalyse.at/

France

Association Strümpell-Lorrain

asl.spastic@wanadoo.fr

http://assoc.orange.fr/asl.spastic

Germany

HSP - Selbsthilfegruppe Deutschland

rk@hsp-selbsthilfegruppe.de

http://www.hsp-selbsthilfegruppe.de/

Great Britain

FSP support Group

ian.bennett@tesco.net

http://www.fspgroup.org/

Spain

Asociacion Espanola de Paraparesia Espastica Familiar

aepef@yahoogroups.com

http://geocities.com/aepef/

Switzerland

Dany Koch

dany.koch@freesurf.ch

 

 

HSP Discussion list

Sweden

Scandinavian discussion list

HSP-scandinavia-owner@egroups.com

 

 

HSP Foundation

Germany

Tom Wahlig Foundation

Wahlig@t-online.de

http://www.fsp-info.de

 

 

Various disorders (of which HSP) groups

  

Belgium

Vlaamse Vereniging Neuromusculaire aandoeningen vzw.

secretariaat@nema.be

http://www.nema.be/

Denmark

Foreningen for Ataksi / HSP og lign. Sykdommer

joke@pc.dk

http://www.sca-hsp.dk/

Finland

Suomen MS liitto ry

anssi.kemppi@ms-liitto.fi

http://www.ms-liitto.fo

Italia (1)

Associazione di Volontariato per la Malattia di Charcot-Marie-Tooth + HSP

fiore@acmt-rete.it

http://www.acmt-rete.it

Italia (2)

Associazione Italiana per l'Assistenza agli Spastici - ONLUS

aiasnazionale@tiscalinet.it

 

Netherland

Vereniging Spierziekten Nederland

vsn@vsn.nl

http://www.vsn.nl/

Norway

Norsk forening for Arvelig - Spastisk Paraparese /-Ataksi

styret@naspa.no

http://www.naspa.no/

 

 

Ataxia federation

 

Europe (13 countries)

Euro-Ataxia

(Marco Meinders, President)

marco.meinders at ataxie.nl

www.euro-ataxia.org/